by Susan
(Dallas, Fort Worth )
Hello, I’d like to share information I learned during my workplace’s outbreak of a serious airborne infectious disease that can cause malignancies, precancerous conditions, rheumatological diseases, connective tissue diseases, heart disease, autoimmune symptoms, inflammation in organs/tissues, seizures, migraines, mood swings, hallucinations, and more - and is often undiagnosed/misdiagnosed in people who are considered immunocompetent.
Some doctors, at least the ones I went to, will actually REFUSE to test for it, even when told someone (and all their coworkers) have all the symptoms and spend a lot of time in a building with bats in the ceiling. Victims will be accused of having hypochondriasis (being a hypochondriac). In fact, the first doctor to diagnose me was a pulmonologist, and the only reason he examined me was to try and prove that I didn’t have the disease! No doctor I went to even realized that bats carry the fungus. And NO doctor I went to in Dallas Fort Worth, even infectious disease “experts,” understand the DISSEMINATED form, only the pulmonary form. And the only test that will be done by most doctors before they diagnose people as NOT having Disseminated Histoplasmosis is an X-ray, even though at least 40-70% of victims will have no sign of it on a lung X-ray. Disseminated Histoplasmosis often gives false-negatives in lab tests (some people are correctly diagnosed only during an autopsy after obtaining negative test results) and cultures may not show growth until after 12 weeks of incubation (some labs do report results after only 2 weeks).
One disease of unknown cause that could be the result of Disseminated Histoplasmosis, I suspect, based on myself and my coworker’s symptoms (during our “rare” infectious disease outbreak) and my own research, is interstitial cystitis and its comorbid conditions. This disease causes inflammation throughout the body and produces “autoimmune” symptoms. And it's not as rare as you think it is. I read that “interstitial cystitis (IC) is a chronic inflammatory condition of the submucosal and muscular layers of the bladder and the cause is currently unknown. Some people with IC have been diagnosed with other conditions such as irritable bowel syndrome (IBS), fibromyalgia, chronic fatigue syndrome, allergies, and Sjogren’s syndrome, which raises the possibility that interstitial cystitis may be caused by mechanisms that actually produce these other conditions. In addition, men with IC are frequently diagnosed as having chronic nonbacterial prostatitis, and there is an extensive overlap of symptoms and treatment between the two conditions, leading researchers to pose that the conditions may share the same etiology and pathology.
Actually sounds like Disseminated Histoplasmosis to me?
My coworkers and I were always most ill around April/May/June, presumably since the Mexican Free-tail bats give birth in Texas during May, and fall We had GI problems, liver problems, weird rashes (erythema nodosum, erythema multiforme, erythema annulare, etc.) and plantar fasciitis. I had swollen lymph nodes, hives, lesions, abdominal aura, and started getting migraines and plantar fasciitis while working in the building, yet I haven’t had any of them since I left. It gave me temporary fecal incontinence, seizures, dark blood from my intestines, tinnitus, nystagmus, benign paroxysmal positional vertigo, what felt like burning skin, various aches and pains (some felt like pin pricks and pinches), tingling, tremors, "explosions" like fireworks in my head while sleeping, temporary blindness, and chronic spontaneous “orgasms”/convulsions.
Suddenly I was also allergic to pears (latex fruit allergy). I had insomnia (presumably from the fungus acidifying the blood, releasing adrenaline) and parasomnias. I suddenly had symptoms of several inflammatory/autoimmune diseases, including Fibromyalgia, Sarcoidosis, ALS, MS and Sjogren’s syndrome that have all disappeared since I left the area and started taking Itraconazole antifungal. No one, including doctors (we all went to different doctors) could figure out what was wrong with us. I was actually being killed by my doctor, who refused to believe I had it and gave me progressively higher and higher doses of Prednisone (at least 2 years after I already had Disseminated Histoplasmosis).
There’s a lot more. I wrote a book about my experience with Disseminated Histoplasmosis called “Batsh#t Crazy”, because bats shed the fungus in their feces. (You can view the book here)
Hope you find this interesting and at least look into this disease further.
Thank you for your time,
Susan McIntyre.
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